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发育医学电子杂志  2024, Vol. 12 Issue (4): 249-254,262    DOI: 10.3969/j.issn.2095-5340.2024.04.002
  结构畸形   论著 |
肠造口患儿家庭复原力的调查研究
司龙妹 黄柳明 刘钢 刘丽 于滢 夏俏
(1. 北京大学第一医院泌尿外科,北京 100034;2. 解放军总医院第七医学中心 儿科医学部,北京 100700)
Investigation of family resilience in infants with enterostomy
Si Longmei, Huang Liuming, Liu Gang, et al
(1. Department of Urology, PekingUniversity First Hospital, Beijing 100034, China; 2. Department of Pediatrics, the Seventh Medical Center ofChinese PLA General Hospital, Beijing 100700, China)
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摘要 【摘要】 目的  探讨肠造口患儿家庭复原力现状,并分析其影响因素。 方法 采用方便抽样法,选
取2021 年10 月至2023 年10 月于解放军总医院第七医学中心儿科医学部住院的132 例肠造口患儿及其照顾者为研究对象。采用一般资料及疾病资料调查问卷、家庭复原力问卷(Family ResilienceQuestionnaire,FRQ)、肠造口患儿家庭主要照顾者照护能力测评量表、简易应对方式问卷(Simple CopingStyle Questionnaire,SCSQ)对其进行调查。统计学方法采用独立样本t 检验、单因素方差分析、Pearson相关性分析和多元线性回归分析。 结果  132 例肠造口患儿FRQ 总分为(75.34±15.47)分。单因素分析结果显示,患儿性别、手术次数、病程、营养状态、医疗费用支付方式的FRQ 得分比较,差异均有统计学意义(P 值均<0.05)。肠造口患儿家庭主要照顾者照护能力测评量表总分为(126.38±29.09)分,应对倾向均分为(16.54±8.68)分。Pearson 相关性分析结果显示,肠造口患儿家庭复原力与主要照顾者照护能力测评量表、应对倾向得分均呈正相关(r 值分别为0.561、0.438,P 值均<0.01)。多元线性回归分析结果显示,手术次数、病程、营养状态、主要照顾者照护能力和应对倾向是肠造口患儿家庭复原力的主要影响因素(P 值均<0.05)。 结论 肠造口患儿家庭复原力处于中等水平,建议医护人员针对家庭复原力影响因素积极引导家长提升家庭复原力水平,促进肠造口患儿疾病康复
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关键词:  肠造口患儿  家庭复原力  照顾者  照护能力  应对    
Abstract: 【Abstract】 Objective To investigate the status of family resilience in infants with enterostomy, and
analyze its influencing factors. Method Using convenient sampling method, 132 infants with enterostomyand their caregivers who were hospitalized in the Department of Pediatrics, the Seventh Medical Centerof Chinese PLA General Hospital from October 2021 to October 2023 were selected as the study objects.General information and disease information questionnaire, Family Resilience Questionnaire (FRQ), thecaring ability assessment scale of primary caregivers of infants with enterostomy and the Simple CopingStyle Questionnaire (SCSQ) were used to investigate them. Statistical methods performed by independentsample t-test, One-way analysis of variance, Pearson correlation analysis and multiple linear regressionanalysis.  Result The total FRQ score of 132 infants with enterostomy was (75.34±15.47) points. Theresults of univariate analysis showed that there were statistically significant differences in FRQ scores ofgender, number of operations, course of disease, nutritional status and payment method of medical expenses(all P<0.05). The total score of the caring ability assessment scale of primary caregivers of infants withenterostomy was (126.38±29.09) points, and the coping tendency scores was (16.54±8.68) points. Pearsoncorrelation analysis showed that family resilience of infants with enterostomy was positively correlated withthe caring ability assessment scale and coping tendency scores of family primary caregivers (r=0.561, 0.438,all P<0.01). The results of multiple linear regression analysis showed that the number of operations, course ofdisease, nutritional status, caring ability and coping tendency of primary caregivers were the main influencingfactors of family resilience of infants with enterostomy (all P<0.05). Conclusion The family resilienceof infants with enterostomy is at a medium level. It is suggested that medical staff should actively guideparents to improve the family resilience level according to the influencing factors of family resilience, so as topromote the disease recovery of infants with enterostomy.

Key words:  Infants with enterostomy    Family resilience    Caregiver    Care capacity    Coping
收稿日期:  2023-04-23                     发布日期:  2024-07-31     
基金资助: 中央军委后勤保障部卫生局项目(145BHQ090003076X);计生专项科研课题(21JSZ18)
通讯作者:  夏俏    E-mail:  xia13651287254@163.com
引用本文:    
司龙妹 黄柳明 刘钢 刘丽 于滢 夏俏. 肠造口患儿家庭复原力的调查研究[J]. 发育医学电子杂志, 2024, 12(4): 249-254,262.
Si Longmei, Huang Liuming, Liu Gang, et al. Investigation of family resilience in infants with enterostomy. Journal of Developmental Medicine(Electronic Version), 2024, 12(4): 249-254,262.
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http://www.fyyxzz.com/CN/10.3969/j.issn.2095-5340.2024.04.002  或          http://www.fyyxzz.com/CN/Y2024/V12/I4/249
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